General Data Protection Regulation (GDPR) statement for Members in the European Economic Area:

By logging into this website, you are providing consent for the University of South Florida (USF) Health Informatics Institute (HII) in the United States to process your personal data, such as your name and contact information, for the purpose of conducting rare disease research for the duration of the rare disease research project. Your personal data may be shared with other members of the research project in the U.S. or other countries to conduct the research. You have the right to access, edit, restrict processing or object to processing of your data as well as the right to data portability. To exercise your rights you can contact the USF HII at cra@hiidatacenter.org. You may contact the data supervisory authority in your country if you have a complaint about the processing of your personal data.